Today I emailed the doctor at John's Hopkins to let him know Matt's chemo treatment plan and also to see if they had received the slides from pathology. In less than 5 minutes I received this reply:
"I did receive the slides and pathology is reviewing the material now. I plan on presenting Matthew's case on Tuesday morning and then I'll be in touch. I forgot to ask, who is the treating oncologist?"
I am so THRILLED that they will be reviewing his case in just TWO days! It makes me want to move to Baltimore so these doctors can handle Matt's care. I thought the question about Matt's treating oncologist was a little tricky since I've never actually met her... I mean, can any doctors reading this tell me if this is normal? It seems so bizarre to me that the person who is supposed to save my sons life has never taken the time to examine him, or look me in the eye so I can decide to trust her. Maybe I'm overreacting, but it really ticks me off!
So, everyone can anxiously wait with me to see what these different doctors say!
Have a happy weekend everyone!
P.S. Tonight we had a nice 'breakthrough' moment! Matt and I were talking in the car. He is so tired right now and he was all curled up in a blanket, resting. I asked him if his stomach felt okay (Carb is supposed to make you very ill). He said his stomach was a little bit sick, but he didn't need any medicine. I started to explain that he might need some extra medication for his sick stomach when he interrupted with, "I know, Mom. The chemotherapy helps the tumor but makes me sick in other ways." I almost cried at this level of understanding from him! It is so rare that he remembers what is going on (i.e. that he even WENT to chemotherapy this week), that I was blown away by this comment! I think everyone's prayers are helping. THANK YOU!!!