Monday, March 08, 2010

The good, the bad, and the ugly. :)

Last week Matt had a visit to PCMC to check up on his blood clots.

The GOOD news is that he was cleared to stop the Lovenox shots. He's given himself two injections daily for 6 months - that's approximately 360 injections! He's been a trooper and we figure it's good preparation for the growth hormone that will be started sooner or later and is also given via injection. :)

The BAD news is that if he ever clots again, he will need to remain on Lovenox or another blood thinner (like Cumiden) for the rest of his life. This is because they do not know what caused the clots. Matt has many risk factors. Besides his weight, he is on two medications that increase the risks of clotting - DDAVP and his steroids. Being dehydrated can cause clotting. Simply having a malignancy somewhere in your body increases the chances of a blood clot. Matt's hematologist believes Matt's clots were not due to one single issue, but they all contributed. We shall see! For now, though, he is injection free and we aren't really missing those shots one bit!

The UGLY. Well, I don't really have an ugly! Okay, so this is sort of ugly..... A few weeks ago I called San Francisco to make an appointment with Dr.Lustig - a pre-surgery appointment. His next available opening wasn't until August. His office lady said she was going to see about scheduling Matt for endocrine with Dr.Lustig along with surgery to discuss things - and hopefully get him in earlier than 6 months in the future! Last week I realized I hadn't heard anything back from them, so I thought I would call and check up on things. Apparently, they went ahead and made us an appointment....... for March 10th! Don't you think we would have liked to know this? We ARE flying in from out of state for the appointment! Thankfully, we were able to get a quick flight & hotel and Matt and I are going to SF this week. Warren was already scheduled to be in Chicago for work, so he can't make it to SF. I'm anxious and excited to speak more in-depth about the surgery and schedule a time for it to happen. Now that we've decided to go ahead and do the surgery, I'm anxious to get this show on the road! Matt seems to be doing very very well at the moment and I think it's a good time to do this minor procedure.

Randomness alert, Randomness alert!  Absolutely not relating to the above information at all, this is our new, wildly entertaining time-waster. On our iPhones, we have this app that lego-izes any photo. You can take a new photo, or use a photo already on your phone. Awesome, huh?!? It also makes a very satisfying clicking sound when you push the button to turn your photo into a lego collage. The very best part is that the app is free. Yea for free entertainment!


Handsfullmom said...

Great news that Matt can take a break from injections. What a trooper to do it twice a day for so long. Good luck with your appointment this week.

EmilyCC said...

Oh goodness! They forgot to tell you about the appointment!?

Glad to hear so much good news!

The Huffies said...

Best of luck, I'll be calling you soon (a lot) I'm sure. Thanks for your kindness in visiting us and the gifts for Lizzie. I hope SF is a productive trip!