New Normal

I think today was a pretty typical day in our 'New Normal' life. This morning Matt felt well enough to go to school and he wanted to take the bus with Will. I wanted to let him, but started to panic when I thought of him attempting to find his classroom on his own! Will is a little bit young for that responsibility, so I called a couple of moms of other 4th graders and asked if their kids could just make sure Matt found his classroom. It turns out I know a few moms who have children in Matt's class who take his bus, so they were able to all walk together to his class. I decided after the first day of school that a full day was just too long for Matt. He is so incredibly tired from the chemo - Sunday he slept ALL DAY, only waking up to eat. So, I thought it would be best to do half days unless he is feeling super well. I picked him up from school at noon, he ate lunch with his little brothers, and then he asked to go up to bed. He slept all afternoon, but had a great evening because he was well-rested. He even had a friend over this afternoon! It's funny how things like giving medicine (it seems like a lot - 6 pills morning and night, plus a nose spray to control diabetes insepidus), orchestrating his life so he finds his way around, and flushing his Broviac, are becoming part of our routine. It is certainly a different 'normal'!